Conference Info
Afflicting millions of people worldwide, sickle cell disease (SCD) is a problem of global scope, and it demands practical, accessible oral therapies.
The conference will focus on finding ways to make sickle cell medicine more available to those in need and finding ways countries can increase funds for research. As this is a world event, researchers and companies working on Sickle Cell Anemia will share their progress with the audience.
This meeting brings together patient groups worldwide, pharmaceutical manufacturers, researchers, care teams, providers, policymakers, NGO leaders, and first ladies to discuss ways to tackle the complexities of coverage and access to SCD treatments and care for those living in low-income countries.
With COVID changing the healthcare landscape, we must work together to tackle issues like rising costs of therapies, persistent health inequities in low-income countries, and gaps in healthcare between western countries and low-income countries.
In addition, we will share ideas on the latest strategies to measure value, improve patient outcomes, and better navigate SCD medications costs.
We need advocate
We remember those living with sickle cell every June 19 by turning the Capital Wheel Red.
Awareness
To help spread the word about sickle cell disease around our communities.
Education
To learn about the impact of sickle cell anemia.
Hope
To find out about research for new treatments and a cure.
Wonders happen when we work together.
We can find a cure for sickle cell anemia!
Date/ Time
Date:
March 8
Time:
10:30 AM - 2:30 PM
Place
At the Nation Press Club
Washington, DC
Who Will Attend?
- Patient groups worldwide
- Patient advocates
- Government health programs
- Employer groups
- SCD providers and clinical care teams
- Researchers
- Pharmaceutical manufacturers
- NGO leaders
- First Ladies
- Policymakers
"Due to the limited capacity, registration can only be done by invitation."