We are thrilled to announce that registration is now open for RARE in the State, a four-week program for families navigating rare disease. Caring for a loved one with a rare condition presents unique challenges, including complex medical systems, specialized provider searches, and overwhelming financial demands, which can make finding reliable support feel nearly impossible. While rare disease advocacy has grown, accessing the right help remains a significant hurdle. To bridge this gap, RARE in the State brings families together in peer-led cohorts to identify essential resources, explore financial assistance options, and build sustainable care systems, all at no cost. We encourage you to register now or share this opportunity with someone who could benefit.
Applications Open November 27, 2026
Register now to receive application updates and opening notifications.
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Our giving program is a cornerstone of our mission, dedicated to supporting rare disease patients and underserved communities. We wholeheartedly welcome the support of generous individuals, organizations, and companies who share our commitment to making a positive impact. Through direct donations, sponsorships, and volunteer engagement, our giving program provides crucial assistance to families caring for a loved one affected by a rare disease. Caring for someone with a rare disease can be immensely challenging, and your support through our program bridges the gap between those in need and those with the resources to make a difference, fostering a sense of community and shared responsibility.
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