12th Annual RareVoice Awards

The RareVoice Awards honors advocates who champion and amplify the rare disease patient voice in state and federal policy. This event will take place, in-person, on Wednesday, December 13, 2023, and we are please you will be joining us

Invite Your Legislators

Please also consider inviting your U.S. Representatives and Senators to attend this year's RareVoice Awards to help us honor advocates who amplify the voice of the rare disease community in state and federal policy on Capitol Hill. At the state level, healthcare policies hold significant sway over the lives of individuals living with rare diseases. They influence critical aspects such as the diagnostic process, treatment accessibility, and overall quality of care. As advocates, it's essential to recognize that one of the most potent methods of influencing these policymakers is through personal, face-to-face engagement.