Oct15
Join us at the RARE Disease Summit to connect, learn, and advance the fight against rare diseases. Learn More
Sep08
Education, when inclusive, breaks barriers for rare disease students, fostering empathy. Learn More
Ver02
Sickle Cell initiatives in Congo provide hope and support to affected individuals.Learn More
Each year, the Petronille Healthy Society hosts one of the largest gatherings dedicated to rare disease advocacy. The RARE Advocacy Summit brings together patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies from around the globe to collaboratively build a path to hope. This event offers an exceptional opportunity for both new and experienced advocates to create meaningful connections within the rare disease community, fostering future collaboration.
Participants will gain valuable insights into the latest innovations in rare disease care, best practices for individual and organizational advocacy, and practical strategies that can be immediately applied to enhance care and drive positive change. Join us for an inspiring event filled with networking, learning, and collaboration.
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