Pediatric Oncology Network

This holiday season, we are proud to celebrate the fifth anniversary of Christmas in Pink, a heartfelt initiative dedicated to bringing comfort and joy to children bravely battling cancer. This holistic initiative provides critical support in three key areas: delivering essential wellness care, supplying educational technology to ensure young patients can continue their learning journeys, and offering direct financial relief to ease the significant burdens on their families. Through compassion and community, Christmas in Pink reminds every child that they are not alone—and that hope shines brightest in their courage.

Rare Disease Day

This multi-day event, hosted by the Rare Disease Legislative Advocates (a program of the EveryLife Foundation for Rare Diseases), brings together rare disease advocates from across the country to make their voices heard by their Members of Congress. Participants are educated on policy proposals impacting the rare disease community and provided opportunities to advocate for policy changes directly to their Members of Congress. Beyond legislative advocacy, the event offers interactive workshops and keynote sessions where experts share insights on current and emerging policy challenges. The agenda is carefully designed to ensure that advocates gain practical skills for effective communication with policymakers.

Educational Workshops and Panels

Round Up for Rare Kids Every day, children in Maryland face the unimaginable challenges of rare pediatric cancers, and their families struggle to find hope and support. Round Up for Rare Kids is a powerful initiative that turns everyday purchases into life-changing support. By rounding up at checkout, you can help fund groundbreaking research, provide critical resources for families, and raise awareness about these devastating diseases. Together, we can bring hope, healing, and a brighter future to children battling rare pediatric cancers, one small act of kindness at a time. Your change can change lives. Whether it's 0.25,0.50, or more, every round-up adds up to make a big difference. Join us in supporting these brave kids and their families. Together, we can ensure that no child fights alone.

Round Up for Rare Kids

This multi-day event, hosted by the Rare Disease Legislative Advocates (a program of the EveryLife Foundation for Rare Diseases), brings together rare disease advocates from across the country to make their voices heard by their Members of Congress. Participants are educated on policy proposals impacting the rare disease community and provided opportunities to advocate for policy changes directly to their Members of Congress. Beyond legislative advocacy, the event offers interactive workshops and keynote sessions where experts share insights on current and emerging policy challenges. The agenda is carefully designed to ensure that advocates gain practical skills for effective communication with policymakers.