Petronille Healthy Society is an IRS Section 501 (c) (3) organization

Mission, Vision and Core Values

Lasting change in health equity starts with the people it is meant to serve. That’s why we collaborate with patients, healthcare providers, global partners, and policymakers to implement inclusive, locally driven solutions. Driven by our mission and unwavering in our commitment, we work to address systemic disparities and build equitable health systems that leave no one behind.

Our Mission

To support the rare disease community and promote health equity through advocacy, accessible care, and education.

Our Vision

A world where every person with a rare disease, no matter where they live, has access to timely diagnosis, quality care, and hope.

Core Values

Petronille Healthy Society (PHS) embodies a set of core values that form the foundation of our mission and actions. Compassion is at the heart of everything we do; we approach our work with empathy, understanding, and a deep commitment to alleviating the challenges faced by those with rare diseases. Collaboration is another pillar of our values, as we actively seek partnerships and alliances with like-minded organizations, healthcare professionals, and advocates to amplify our impact. Advocacy is ingrained in our ethos, driving us to be vocal champions for the rare disease community, striving to influence policy changes and improve access to care.
Finally, innovation guides our approach, as we continuously explore new ideas, technologies, and strategies to address the evolving needs of those we serve.


Thank you to our sponsors, donors and key partners