Excellent results can only be achieved when we work together. That is why the Petronille Healthy Society (PHS) has consistently prioritized the inclusion of change agents at the core of our mission. These change agents include community members, NGOs, institutions, local healthcare professionals, social innovators, and government—a commitment we have upheld since our inception. This approach empowers us to effect transformative change in the lives of millions of people and address data gaps on a range of critical issues, such as rare diseases, mental health and addiction, community health education, malaria, nutrition and food security, and children's malnutrition. Partner with us today to make a difference.
Our mission is to support the rare disease community and provide free healthcare services, education, and training to the most vulnerable, impoverished, and underserved communities.
The vision is ever-increasing access to medical treatment, better education, and nutrition, especially for those unable to pay for the necessary products and services.
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Petronille Healthy Society (PHS) embodies a set of core values that form the foundation of our mission and actions. Compassion is at the heart of everything we do; we approach our work with empathy, understanding, and a deep commitment to alleviating the challenges faced by those with rare diseases. Collaboration is another pillar of our values, as we actively seek partnerships and alliances with like-minded organizations, healthcare professionals, and advocates to amplify our impact. Advocacy is ingrained in our ethos, driving us to be vocal champions for the rare disease community, striving to influence policy changes and improve access to care.
Finally, innovation guides our approach, as we continuously explore new ideas, technologies, and strategies to address the evolving needs of those we serve.
The Petronille Healthy Society is proud to host a State Advocacy Day, bringing together Maryland residents affected by rare diseases to engage with their state legislators, share their personal stories, and collectively advance the policy priorities of the rare disease community. We cordially invite you to join us for this significant event.
At the state level, healthcare policies hold significant sway over the lives of individuals living with rare diseases. They influence critical aspects such as the diagnostic process, treatment accessibility, and overall quality of care. As advocates, it's essential to recognize that one of the most potent methods of influencing these policymakers is through personal, face-to-face engagement.
Joining Maryland's Rare Disease State Advocacy Day provides you with the means to directly shape policies that address the unique needs and challenges faced by the rare disease community. It's an opportunity to translate your personal experiences and insights into concrete changes that benefit all those impacted by rare diseases in Maryland.
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