Dr. Traceey Cordrey currently serves as the Chief of Policy, Advocacy, and Patient Engagement at the Petronille Healthy Society, a role that she has embraced with over two decades of experience in the field of rare disease advocacy. Her journey in this specialized area of healthcare is both extensive and impactful, demonstrating a lifelong commitment to improving the lives of those affected by rare conditions.

Before her tenure at the Petronille Healthy Society, Dr. Cordrey had a significant eight-year stint at a renowned children's hospital, where she focused her expertise on pediatric rare diseases. This period was crucial in her career, laying a solid foundation for her future endeavors. At the children's hospital, Dr. Cordrey developed a deep understanding of the unique challenges faced by young patients with rare diseases and their families. Her work during this time not only enriched her professional knowledge but also reinforced her dedication to making a tangible difference in the lives of those grappling with rare conditions.

Following her impactful service at the children's hospital, Dr. Cordrey joined the Petronille Healthy Society. Her arrival coincided with a growing recognition of rare diseases in public health discourse. With her Ph.D. and extensive background, she quickly became a key figure in the organization, championing policies and advocacy efforts that have significantly influenced both national and global perspectives on rare diseases.

At the Petronille Healthy Society, Dr. Cordrey's role encompasses a broad spectrum of responsibilities, all aimed at elevating the rare disease community. She has been instrumental in shaping policies that enhance access to care and treatment for patients with rare diseases. Her efforts are not confined to national boundaries; her work has a global reach, impacting health policies and ensuring rare diseases are a priority in global health discussions.
Dr. Cordrey's approach to her work is characterized by a deep commitment to collaboration and inclusivity. She has been pivotal in building networks among patients, caregivers, healthcare professionals, and policymakers. Under her leadership, these diverse groups have come together to create more inclusive and effective healthcare policies and practices. Her dedication to fostering community engagement is evident in her efforts to organize impactful conferences, workshops, and advocacy events.

As a respected researcher, Dr. Cordrey's contributions to the field of rare diseases extend to the academic realm as well. Her publications offer critical insights into the challenges faced by the rare disease community and provide practical solutions to some of the most pressing issues in rare disease care and advocacy. Her research has significantly contributed to academic discourse and informed policy and practice in the care of rare diseases.
In her current role, Dr. Cordrey continues to innovate and lead in patient engagement strategies, ensuring that the voices of rare disease patients are heard and considered in all aspects of healthcare policy and practice. Her work has been recognized through numerous awards and honors, reflecting her status as a respected leader and advocate in the field.

Dr. Tracey Cordrey's legacy within the Petronille Healthy Society and the broader rare disease community is profound. Her ongoing efforts not only shape the landscape of rare disease advocacy but also bring hope and support to countless individuals and families affected by these conditions. As she continues her vital work, Dr. Cordrey remains a beacon of hope and a driving force for positive change in the ongoing fight for the rights and wellbeing of the rare disease community.

Dr. Tracy Cordrey Chief of Policy, Advocacy, and Patient Engagement