In our Rare Disease News section, we provide a comprehensive and up-to-date resource for individuals and families impacted by rare diseases. Here, you'll find a wealth of valuable information, including the latest rare disease-related news, groundbreaking research developments, advocacy efforts, grant opportunities, policies, and other relevant updates. We understand that staying informed is crucial for those navigating the complexities of rare diseases, and our commitment is to keep you well-informed with the most recent and pertinent information. Whether you're looking for insights into innovative treatments, policy changes, or the tireless work of advocacy groups, this section is your go-to destination. Stay Informed and Empowered.
If the governing board or committee has reasonable cause to believe a member has failed to disclose.