The Petronille Healthy Society is proud to host a State Advocacy Day, bringing together Maryland residents affected by rare diseases to engage with their state legislators, share their personal stories, and collectively advance the policy priorities of the rare disease community. We cordially invite you to join us for this significant event.
At the state level, healthcare policies hold significant sway over the lives of individuals living with rare diseases. They influence critical aspects such as the diagnostic process, treatment accessibility, and overall quality of care. As advocates, it's essential to recognize that one of the most potent methods of influencing these policymakers is through personal, face-to-face engagement.
Joining Maryland's Rare Disease State Advocacy Day provides you with the means to directly shape policies that address the unique needs and challenges faced by the rare disease community. It's an opportunity to translate your personal experiences and insights into concrete changes that benefit all those impacted by rare diseases in Maryland.