Petronille Healthy Society is an IRS Section 501 (c) (3) organization

Advocacy Group

Become a vital member of our advocacy group, where passionate individuals unite for a common purpose: driving meaningful change. Joining our advocacy group means connecting with like-minded advocates, pooling diverse perspectives, and collectively amplifying our voices to impact policy, raise awareness, and inspire change. Together, we form a formidable force, working collaboratively to address pressing issues and contribute to a better, more equitable future. Join our advocacy group today and be an integral part of a community dedicated to making a positive impact on the world around us.

Join Us

Join us on the journey as we prepare to engage with legislators. Your voice matters, and together, we can advocate for change. Be part of the movement as we gear up to meet with legislators, amplifying the collective call for impactful policies and creating a lasting impact in our community.

Advocacy Resources

Explore our advocacy resources hub, a valuable repository designed to empower and guide you in championing change. From informative guides to impactful tools, our advocacy resources are tailored to equip you with the knowledge and skills needed to be an effective advocate. Whether you're seeking to raise awareness, influence policies, or mobilize communities, our comprehensive collection is here to support and amplify your advocacy efforts.

Legislative Scorecard

Explore our Legislative Scorecard, an invaluable tool that provides transparent insights into the legislative landscape. This comprehensive resource assesses lawmakers' positions on crucial issues, enabling you to make informed decisions about the individuals shaping policy. Our Legislative Scorecard empowers you to engage in informed advocacy, fostering accountability and transparency in the legislative process. Stay informed, track progress, and be an active participant in shaping the future by utilizing our Legislative Scorecard to understand the legislative journey and its impact on the causes you care about.


Join Us for Maryland's Rare Disease State Advocacy Day.

The Petronille Healthy Society is proud to host a State Advocacy Day, bringing together Maryland residents affected by rare diseases to engage with their state legislators, share their personal stories, and collectively advance the policy priorities of the rare disease community. We cordially invite you to join us for this significant event.

Why Should You Participate?

At the state level, healthcare policies hold significant sway over the lives of individuals living with rare diseases. They influence critical aspects such as the diagnostic process, treatment accessibility, and overall quality of care. As advocates, it's essential to recognize that one of the most potent methods of influencing these policymakers is through personal, face-to-face engagement.

Joining Maryland's Rare Disease State Advocacy Day provides you with the means to directly shape policies that address the unique needs and challenges faced by the rare disease community. It's an opportunity to translate your personal experiences and insights into concrete changes that benefit all those impacted by rare diseases in Maryland.


When

December 14, 2023

Location

TBD

RSVP @

dntsomic@petronillehealthysociety.org

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