Welcome to the Global Community for Rare Disorders (GCRD), where dedication meets impact in the realm of rare diseases. At Petronille Healthy Society (PHS), we are more than an organization; we are a global community committed to transforming the landscape for individuals facing the challenges of rare Disorders. With an unwavering focus on connecting, informing, supporting, and research, GCRD serves as a beacon of hope for those navigating the often complex journey of rare diseases.
Get help with access to medication, diagnostics, caregivers support, and other needs.
Get support
Get help with access to medication, diagnostics, caregivers support, and other needs.
Get support
Get help with access to medication, diagnostics, caregivers support, and other needs.
Get supportIn the heart of our mission lies the Support Network, a virtual haven connecting patients, caregivers, and healthcare professionals worldwide. Here, the exchange of experiences, knowledge, and emotional support transcends geographical boundaries. The power of shared stories and collective resilience empowers our community, fostering a sense of belonging and understanding.
At GCRD, our commitment to research extends beyond conventional boundaries. Our Research Hub serves as a nexus for innovation, bringing together brilliant minds from diverse disciplines to tackle the intricate challenges posed by rare diseases. Through strategic partnerships with esteemed research institutions, we harness the collective power of leading scientists and experts. This collaborative approach facilitates the exchange of knowledge, resources, and cutting-edge technologies, amplifying our capacity to drive meaningful advancements in the field. By fostering a dynamic ecosystem of discovery, GORD strives to shape a future where breakthroughs in rare disease research translate into tangible improvements in patient care and well-being.
Our commitment to patients extends beyond geographical boundaries. Our robust platform facilitates global connections, providing a vital network for individuals grappling with rare diseases.
GCRD goes beyond mere connection by ensuring that our global community is well-informed and well-connected. Our platform serves as a comprehensive resource hub, offering up-to-date information on rare diseases, treatment options, and the latest research breakthroughs. By empowering patients with knowledge, we enable them to make informed decisions about their health, treatment plans, and overall well-being. In essence, GORD is not just a network; it's a global information hub dedicated to arming patients with the insights they need to navigate the complexities of their rare disease journeys.
We help inform and advocate for legislation and policies that reflect the needs of rare disease patients and their families.
Read MoreWe provide information about rare diseases, patient organizations and other resources. We also promote awareness of rare diseases among physicians and other medical professionals.
Read MoreWe pioneered Patient Assistance Programs in 1987. Today, NORD programs include free drug, co-pay and premium assistance, travel/lodging assistance for clinical trials, expanded or emergency access, and more.
Read MoreDisease-specific patient organizations are crucial partners in our mission to serve rare disease patients and their families. That’s why we provide capacity building and mentorship services to start-up and established organizations.
Read MoreOur grant programs have resulted in numerous published advances and at least two FDA-approved therapies.
Read MoreNORD believes in the power of collaboration. It is the foundation upon which NORD was built. NORD works with partners in the patient community, government, academia, and industry who share the ultimate goal of identifying, treating, and curing rare diseases.
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